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Who is using my medical data?

Tuesday, 31st of January 2017

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When applied to data-driven medicine, and in particular to the popular paradigm of the Learning Health System, provenance allows us to establish a full computational trail of what happened in a clinical trial or an epidemiological study. Once the methods to achieve this have matured, it will become possible to reliably trace the use of individual's data through the research process. Should that capability become available to the public, what would be the consequences? Would it change the way we do research? Would people want to start charging for the use of their data? Would they want to restrict certain types of research, or certain sponsors, from accessing their information? And what kind of bias would it introduce into resulting studies? These are some of the issues we would like to discuss in the talk.

Vasa Curcin is a lecturer in Health Informatics jointly at the Department of Informatics and the Division of Health and Social Care Research at King’s College London, where he leads the Biomedical Informatics Group. Vasa’s research focuses on the development of informatics technologies with particular focus on knowledge acquisition and process improvement in the context of Learning Healthcare Systems.

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